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Stanford University 4th Annual Spinal Muscular Atrophy Conference: Clinical Complexities and Gaps of Care in the Genetic Treatment Era – Lessons Learned Treating SMA

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Event Details:

Continuing medical education and training in this era of disease-modifying treatments for the evolving SMA phenotype requires thoughtfulness for the most optimal outcomes.  With the implementation of the most current newborn screening guidelines, clinicians managing individuals with SMA require up-to-date knowledge on the treatment landscape, long-term outcomes, and clinical-decision making.  We intend to continue to enhance the knowledge and understanding of healthcare providers including physicians, specialists, physical therapists, occupational therapists, speech language pathologists, nurses, and providers not affiliated with specialized centers, in the clinical decision-making and medical and rehabilitative management of individuals with SMA.

This in-person 2-day conference (with an option for virtual livestreaming) is provided to (1) integrate new 2022 treatment developments as well as anticipated long-term outcomes into clinical decision-making; and (2) support healthcare providers, outside of specialized SMA centers, to manage individuals with SMA using evidence-based rehabilitation and medical strategies.

The conference will include an educational lecture series providing an overview of the SMA treatment landscape and beyond, long-term outcomes, re-evaluation, and monitoring and optimization for best outcomes for individuals identified via newborn screening.  Multi-disciplinary management including orthopedic, nutritional, and mental-health considerations will be discussed.  Didactics will be followed by shared break-out sessions including clinical case discussions.  These sessions will include opportunities for shared discussion on clinical decision-making for broad and complex phenotypes from both the rehabilitation aspect as well as to support multi-disciplinary providers.

At the end of this conference, participants will have strategies to utilize the current advances in therapeutic treatments, clinical, and rehabilitative management in SMA. Attendees will understand opportunities available to enhance clinical care, determine the most appropriate treatment, medical and rehabilitative interventions.


There are two ways to attend this hybrid activity:  in-person or virtually.

1. In-Person
Registration Fees (Includes course materials, breakfast and lunch, and a certificate of participation)

Early Bird Rates:
Physician - $250
International Physician - $140
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $200
Industry - $350
Trainee/Resident - $75

Rates after 11/4/2022:
Physician - $300
International Physician - $180
AHP/CA Children's Services/Public Health Provider/Administrator/Staff - $250
Industry - $400
Trainee/Resident - $75

2. Virtually
Registration Fees (Join virtually to watch Friday, December 2nd from 8am - 12pm PST and Saturday, December 3rd from 8am - 11:30am PST. Fees include course material and a certificate of participation. You will receive your Zoom link 1 week prior to the conference.)

Early Bird Rates:
Virtual Attendance - $140
Virtual Attendance: Trainee/Resident - $75

Rates after 11/4/2022:
Virtual Attendance - $180
Virtual Attendance: Trainee/Resident - $75

Tuition may be paid by Visa or MasterCard. Your email address is used for critical information, including registration confirmation, evaluation, and certificate. Be sure to include an email address that you check frequently.

STAP-eligible employees can use STAP funds towards the registration fees for this activity.  Complete the STAP Reimbursement Request Form and submit to your department administrator. 


AMA PRA Category 1 Credits™ (13.75 hours), Non-Physician Participation Credit (13.75 hours), ANCC Contact Hours (13.75 hours)

Target Audience

Specialties - Neurology , Neuromuscular Medicine

Professions - Advance Practice Nurse (APN), Fellow/Resident, Medical Student, Non-Physician, Nurse, Occupational Therapist, Physical Therapist (DPT), Physician, Physician Assistant (PA), Professional Nurse (RN), Psychologist (PsyD)(PhD), Social Worker


At the conclusion of this activity, learners should be able to:

  • Summarize the current therapeutic treatments for individuals with SMA and the anticipated long-term outcomes.
  • Recognize and discuss the importance of optimization for best outcomes in the setting of newborn screening from a multi-disciplinary perspective.
  • Apply appropriate rehabilitation and medical strategies based on best practices for optimal outcomes.


In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 
Stanford Medicine designates this live activity for a maximum of 13.75 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC) 
Stanford Medicine designates this live activity for a maximum of 13.75 ANCC contact hours.  

Stanford Health Care Department of Rehabilitation is an approved provider for physical therapy, occupational therapy, and speech therapy for courses that meet the requirements set forth by the respective California Boards. This course is approved for 13.75 hour(s) CEU for PT, OT, and SLP.